Showing posts with label my opinion. Show all posts
Showing posts with label my opinion. Show all posts

Thursday, April 17, 2014

A New Word!

Autism is an umbrella term. It encompasses Einstein (suspected to have had Aspergers' syndrome), me, classically autistic children who can't speak at all, and everything in between. How can one word do so much? It can't. In meaning so many things, it has been stretched too thin and now means almost nothing! 
 I don't want to call myself autistic. Not because I don't want to be labeled (I like labels,) but because I want to be labeled accurately and precisely. And it seems wrong when the same label applies to severely autistic kids who need so much more help than I do–as if I'll dilute the word's power by stretching its meaning so far. I also don't want a long phrase, or anything with overtly negative connotations.  I want a word that means high-functioning autism or Aspergers' syndrome only, but in fewer words and without the negative connotations of autism and syndrome.
The words I want don't yet exist. So I set out to find some myself:
Mentally Different
This one fits two of the three criteria: it's not too long, and it carries no negative connotation. I've used it before, but there's one major problem: inexactness. What, exactly, is mentally different? It could be anything, not just high-functioning autism! Time to try again…
Aspie
I didn't make this one up, which is good because I don't like it much. It sounds silly, and while it's short, its root is Aspergers' syndrome, which definitely has a negative connotation. (I don't like having a syndrome. It sounds dreadful!)
Neuroatypical
Not too long, not too silly…this one is turning out well. It's not very exact, but since autistic people call "normal" people neurotypical, it's more "connected" to autism than "mentally different" is. Then I looked it up…and found out that according to Urban Dictionary (a notoriously unreliable source), it means someone with autism or a whole host of other disorders; schizophrenia, bipolar disorder, dyslexia, et cetera. Another inexact term!
Nonallistic
The negative of allistic, which is a synonym for neurotypical someone not on the autism spectrum. If allistic means not autistic, nonallistic must mean autistic. And since we already have autistic to refer to the severe forms, I claim nonallistic for my side of the spectrum; the high-functioning autistics. (I made it up, so I get to decide what it means.)
nonallistic:
adj. | non-a-lis-tic | negative formation of allistic
a person with high-functioning autism or Aspergers' syndrome 
That's it! I've coined a new word! And now that I have my terminology straight, I can get on to what I meant to do before I noticed this problem, which was write about Autism Awareness Month.
More posts to follow soon!

Thursday, February 13, 2014

What I See

I've been told my eyes dart around when I talk to people, never lingering on their nose or eyes or wherever you're supposed to look, but flicking up, to the side, out the window, watching passers-by, reading signs, watching out. "Look at people when they talk to you," my mother tells me. "Why do you stare out the window in the car instead of looking at me? You have to look at people."

Well, I do. They're just never the right people. Imagine you're talking to someone. You're standing in the middle of the grocery store gabbing away, having just run into some long-lost friend using the mystical power of Face Recognition. What do you see?
I won't tell you, because I don't know. But here's what I see:
There's a traffic jam in the parking lot, and several employees in bright orange vests are directing traffic. I wish I had a bright orange vest. It would be fun to direct traffic. My favorite cereal is on sale–two for one. A bag dispenser in the produce section is almost out. There's that friendly employee, restocking the chips. He's always doing that. How many chips can people eat? A cart is coming down the aisle, a flickering overhead light reflected in its metal. An angry driver leans on his horn outside. The express lane sign says "10 items or fewer", which is good because "10 items or less" is grammatically incorrect. The produce guy has a big knife for cutting the brown ends off celery. Someone's spending a fortune on groceries in lane 4. Is Mother making a disapproving face at me?

Oh, wait. I'm supposed to look at the person talking to me.
Here's what I see now:
A brown spot has taken up residence on their cheek. Am I looking in the right place? People's noses are boring. Am I staring? Is Mother still making a disapproving face? I try to remember some detail of the shape of their nose, their eyes, their chin– it slips away as soon as my eyes do. I look past them at the traffic directors. Can they tell? Probably. I pull my eyes back to their thoroughly ordinary-looking nose. The need to look around–to know exactly where I am and what surrounds me–grows until it's almost painful. I remind myself that successful engineers have good social skills. There are no spiky crushers on the grocery store ceiling. Spiky crushers do not exist, except in video games. There are other things that fall on you from the ceiling, that paranoid part of me argues, the part that tells me to get behind something when a car drives by, in case they're looking for someone to shoot at. (I really have no idea where that part came from. Nobody has ever been shot at while walking up our street.) I hear a cart creaking behind me. If I turn around to look, Mother will make a disapproving face. In the car, she'll tell me again: "You have to look at people when they talk." And I'll look out the window and admire the scenery, and watch for rogue garbage trucks*, and tell her I'll try.

And I am trying. I'm getting better at looking at people, though I don't think it's improving my face recognition skills, or providing any useful social insights. I try because I've been told that flicking your eyes around–furtive eye movement, when you want a negative connotation–makes you look dishonest. Because I want to be a spacecraft engineer, and nobody will hire someone who twists around to look behind them at every noise. Because maybe if I look at people's faces, eventually I'll start picking out the little details that apparently tell you how they're feeling. But looking at people is hard, especially when there's so many other, more interesting things to look at. So if one day you meet someone whose eyes dart around, looking everywhere but at your face, don't think "They're not paying attention." Maybe they are. Maybe you've run into someone like me, who looks at everything, not just your face.

*I have a problem with garbage trucks. When I was little my room faced an alley across our street where, every Wednesday at some ungodly hour of the morning, a huge garbage truck would come charging along, looking as if it was about to crash through my window until it turned onto the street proper. I have less of a problem with recycling and yardwaste trucks, but they're all too big and noisy.

Sunday, December 29, 2013

On Personal Shoppers, Disruptive Patterning, and Bad Music at the Mall

I do not like shopping. Well, that's not entirely true. I like grocery shopping, and going to the Apple store. I do not like shopping for clothes. The mall is a terrible place, mostly because all the stores seem locked in competition for the Worst and Loudest Music Award. Almost everything is hideous, and of the stuff that isn't, almost nothing fits. (I am shaped somewhat like a short, tailless Mewtwo.) My brother likes shopping even less, to the point where we have to bribe him with food to get him to cooperate. So on our latest shopping expedition (December 27th, after the crowds are gone) I became his unofficial personal shopper. My mother shops for me sometimes, but she doesn't understand my brother, who won't care if his clothes are microfiber as long as they're soft, and hates anything plaid because it's confusing to look at.* (Mother thinks plaid is cute. I disagree.) So in the interest of avoiding second and third shopping excursions, I made it my job to feel everything for softness, discourage the purchase of ugly plaid things and choose colors (red, orange, gray and navy are good.)
I am not perfect. We're going shopping again today, to return half our purchases for being "too scratchy". But interestingly enough, the things Mother picked out are going back; the shirts with scratchy seams, the shorts with a scratchy waistband she thought would be better than the thick, soft one. I really should have pointed those out and avoided a second shopping trip. Maybe I could be a personal shopper…but only for my brother, and to avoid prolonging our shopping expeditions, because I decided long ago not to work in any industry that involves long discussions with customers.
There's a business idea in here somewhere. Specially trained personal shoppers to buy clothes for the autistic and otherwise mall-averse? Good idea, but it sounds a bit expensive. A store specializing entirely in soft and fluffy things? That might already exist. A quiet mall with soundproofing instead of speakers? Now there's a good idea. If anyone reading this is a mall manager, consider that free business advice.

*Plaid, checks, some stripes and other black-and-white patterns can range from confusing to painful to look at. I consider them disruptive patterns, like the stripes of a zebra which confuse lions trying to pick one zebra out of a herd.

Wednesday, April 17, 2013

Autism Awareness Month–A Week of Thinking Logically

Happy Autism Awareness Month, everyone! By the end of April, I hope you will be more aware of the mentally different people you may encounter in life. (And yes, I know it's now almost the middle of April, but I had a permissions problem and couldn't log in to post for a while.)
First, let's think about logic. The first thing that comes to my mind is a computer. Computers seem very smart, but are actually very stupid. They can add a thousand numbers in a second, remember a terabyte of data (provided a large enough hard drive), and calculate the fastest route between your house and the grocery store. However, a computer cannot infer meaning from context, compose a well-written sentence or understand an idiom. If a programmer leaves out a comma, the compiler will probably throw a fit over "invalid syntax". But if I wrte lik dis, u stll undrstand!
Now, some autistic people can remember thousands of bits of meaningless data, or square any number in their head. I am not one of them; those people are called savants and are extremely rare. I do, however, think somewhat like a computer. To me, the sentence "Go do your work" is very different from "Go do your schoolwork", though my mother insists they both mean the latter. Upon hearing the former, I started tidying my room, and was scolded for not doing my math.
I don't say "Stay there," I say "Stay within a 5-foot radius of your current location" (this is particularly useful for brothers, who tend to wander off to the video game aisle at Target).
When people ask how my day was, I have to stop and remember; they don't actually want to hear all about it. I prefer concrete language, and well-defined terms; say what you mean. A good test is to ask yourself: "If I ran this through Google Translate, would it still mean what I want it to?"
Neurotypicals, your assignment this week is to think logically. Don't assume anything. You will find a lot of unknowns, but that's to be expected. And remember, you can pretend to be a computer, but a computer can't pretend to be you! (at least, not yet…)

Thursday, November 15, 2012

The Mentally Different


I am not "special needs". I am mentally different.

The term "special needs" is, to me, a bit absurd. Taken literally, you could say everyone has special needs. Everyone has some kind of problem. And then there are the negative connotations. Nobody wants to be "special needs", though using the literal definition, everyone is!

The third complaint I have with this word is that it's too generic. "Special needs" lumps the blind with the deaf, with the physically disabled, the mentally disabled, and what I think of as the mentally different. "Special needs" encompasses people in wheelchairs, people with brain injuries, Einstein, sociopaths, and basically anyone who doesn't fit into the definition of normal. It's one of those umbrella terms that simultaneously means almost everything, and therefore almost nothing.

There is only one definition for mentally different.*

The mentally different (according to me), are those on the autism spectrum. Note the lack of positive or negative connotation; we're not the mentally disturbed, or gifted, just different. Everyone has "special needs", and we are no exception. But we also have special abilities. Positive and negative cancel, and we're left with a neutral term; mentally different.**

I am not disabled. I am different.

*Technically, everyone is unique and therefore mentally different (in the literal sense) but don't be a literalist; it can get annoying.
**This term applies especially to those with Asperger's Syndrome or high-functioning autism.

Thursday, August 23, 2012

Internet Communication Reduces Misunderstandings!

Breaking News: Internet Communication Reduces Misunderstandings!
No, that's not a real headline.
Most people believe the Internet increases misunderstandings, unintentional offenses, and other social mistakes.
But I disagree.
The real world is practically infested (my favorite word) with opportunities for confusion. You can send the wrong message so many ways…the way you sit, the way you stand, your tone, your face, your hands–everything can become an offense.
The digital world, on the other hand, is much simpler: Communication is reduced to text, and occasionally a faceless, nameless voice coming out of a speaker.
One would think this would increase problems, but I think it reduces them. For example, on the Steam Community forums (computer gamers discuss games there), there are very few misunderstandings. There are plenty of arguments, trolls and other Internet phenomena, but for the most part, everyone understands each other's intentions pretty well.
I've been 'researching' (read: reading and occasionally posting on) the forums for about a month now, and have figured out why: The users have invented their own 'internet dialect,' mostly derived from texting abbreviations and BBCode. For example, the end tag /rant, while not an actual piece of code, prevents readers from taking offense at the crazy rant you posted with humorous intent. Smileys help convey your intentions–you might add a :p or a ;) to show you're not being completely serious. And if you don't have the right smiley, you can fall back on the code and type something like :overworked: to represent an overworked face.* You could write something like "You're right! Alien mind control is going to bring about the apocalypse! :crazy:", and instead of writing you off as a nutcase, people laugh at your silliness.
I haven't 'researched' other forums much, but the ones I do look at all have some version of Internet Dialect. The codes are slightly different, but it's the same idea. And speaking of ideas…
Yesterday, I accidentally offended my dad with a poorly written email. He got very upset and wrote an offended (and offensive) reply back! I don't think it would have happened if I had ended with a /rant tag, or a :p (or both.) What if the Internetters united to create a standard code? Everyone would learn it, use it in forums, email and chat, and Internet-related misunderstandings would be virtually eliminated! It could even make its way into spoken language (grammarians and English teachers would have a collective fit.)
Yes, I'm getting into nutty scifi ideas here, but it could happen…

*To be completely accurate, you have to put /noparse tags (which prevent the plaintext inside from converting into rich text) around this one, because the :o converts to an 'embarrassed' smiley.